Past Event
Mar
AusACPDM Listening and Sharing: March 2025
Migration Health and Disability Discrimination: Where are we at?
Join us in our free listening and sharing session.
26th March 2025, 4:00pm – 5:00pm Australian Eastern Daylight Savings time
Topic information: Australia’s migration laws discriminate against people with a disability or a health issue. Hear from Welcoming Disability Policy Advisor Dr Jan Gothard about these laws. Be updated about recent changes and recommendations from the DRC currently being reviewed by the Attorney General’s Department including the discriminatory components of migration.
Speakers: Dr Jan Gothard
The session will be facilitated by: Sarah McIntyre
Date: 26 March - 26 March
Location: Zoom, register for link.
Register now More detailsMar
The Rehab for Kids 2025 Conference
The Rehab for Kids 2025 Conference to be held at the Brisbane Convention Centre is open for registration!
We invite doctors, allied health professionals, teachers and others working with children with Acquired Brain Injuries, Cerebral Palsy, Spinal Cord Injuries and related conditions, as well as those with lived experience, to join us for this fantastic learning and networking opportunity.
The Rehab for Kids conference is a national conference organised by the Queensland Paediatric Rehabilitation Service (QPRS), Queensland Children’s Hospital, and partnered with the Australasian Cerebral Palsy Clinical Trials Network (AusCP-CTN), to provide the latest information and research relevant to paediatric rehabilitation.
The QPRS ABI in children research program will be hosting ‘Concussion in Management across the lifespan: from theory to practical approaches’ on 5 March 2025.
See the program and register here: Rehab For Kids 2025 (eventsair.com)
Date: 5 March - 7 March
Location: Brisbane Convention & Exhibition Centre, QLD
Register nowNov
AusACPDM: Listening and Sharing Session November 2024
This interactive AusACPDM Listening and Sharing session will be about:
Research in low and middle income (LMIC) country settings. Growth in healthcare research capacity in LMIC settings will make important contributions to reducing healthcare challenges and disparities in LMIC countries. Locally led research has potential to propose, evaluate and translate culturally appropriate interventions and solutions, and at the same time, empower communities to articulate their needs and influence solutions. For this Listening and Sharing session, two PhD programs of work being conducted in LMICs will be presented.
This session will be of interest to clinicians, researchers, students and people with lived experience.
Presenters include:
Ms Thilini Madushika, “Cerebral palsy in western province Sri Lanka”. PhD candidate based Sri Lanka
Mr Anderson Mughogho, “The feasibility of implementing the GMA in the NICU of a referral hospital in Malawi-caregiver and professional perspectives”. PhD candidatebased in Malawi
Professor Alicia Spittle, University of Melbourne, who is part of the supervision of both PhD candidates will share her experiences of supporting research higher education in LMIC
The session will be facilitated by: Professor Jenny Downs, Head of Child Disability, The Kids Research Institute, Australia.
Disability, The Kids Research Institute Australia.
Date: 27 November - 27 November
Location: Zoom, register for link.
Register now More detailsOct
AusACPDM Listening and Sharing session: October 2024
Co-design of a novel knowledge translation tool: Australian Selective Dorsal Rhizotomy (SDR) Decision Aid
Join us in our free listening and sharing session.
30th October 2024, 4:00pm – 5:00pm Australian Eastern Daylight Savings time
Topic information: Join us for the launch of the SDR Decision Aid. The SDR Decision Aid provides evidence-based information about SDR that is easy-to-understand, accessible and relates to our Australian experience. The purpose of the SDR Decision Aid is to start the conversation with families when discussing SDR as a treatment option for children with bilateral spastic cerebral palsy so that the right decisions can be made for right child at the right time.
This session will be of interest to clinicians, researchers, students and people with lived experience.
Speakers: Jenny Lewis (CHW NSW), Dr Neil Wimalasundera (RCH Vic), Meredith Wynter (QCH Qld), Felicity Baker (WCH SA).
The session will be facilitated by: Dr Simon Paget (CHW NSW)
Date: 30 October - 30 October
Location: Zoom, Register for the link
Register now More detailsSep
AusACPDM Listening and Sharing: September 2024
CP Active – Activating Our Voices for Change
Join us in our free listening and sharing session.
25th September 2024, 4:30pm – 5:30pm Australian Eastern Savings time
Topic information: An update on the CP community’s advocacy platform, CPActive. CPActive is a grassroots movement driven by individuals with CP, similar disabilities, and their allies. Discover our three key pillars: advocating for change, fostering community, and creating opportunities for development. Learn about our initiatives and find out how you can be part of our community and help amplify the voice of lived experience towards inclusion.
This session will be of interest to clinicians, researchers, students and people with lived experience.
Speakers:Aman Gopalani, Daniel Clarke, Riley Saban, Sophie Geeves and Teigan Butchers
The session will be facilitated by: Georgina Henry
Date: 25 September - 25 September
Location: Zoom, register for link.
Register now More detailsApr
2025 CP-Acheive & AusACPDM Cerebral Palsy Symposium
The 2025 CP-Achieve and AusACPDM Symposium will focus on Progress and Possibilities- celebrating 5 years of research through lived experience and planning the future, and is an event not to be missed!
The symposium will bring together the CP-Achieve team, collaborators, invited researchers, and people with lived experience to share the work that has been accomplished in the past five years and new knowledge on the advancement of lifespan outcomes for young people with cerebral palsy.
The symposium will be held over two days and explore research looking at the health, well-being and participation of adolescents and young people with cerebral palsy and the future of cerebral palsy research beyond CP-Achieve.
There will be a range of interesting and informative speakers and expert talks covering the latest research, as well as opportunities for symposium attendees to engage, contribute and network.
This will be an in-person event and there will be no live streaming or recordings available post symposium.
EARLY BIRD REGISTRATION OPENS AT 8:00AM 31 JULY 2024!
Visit the CP-Achieve website for more inforamtion
https://www.cp-achieve.org.au/about/the-cp-achieve-ausacpdm-symposium-2025/
Date: 3 April - 4 April
Location: Melbourne
Register nowJun
AusACPDM Listening and Sharing Session: June 2024
Congenital Cytomegalovirus
Join us in our free listening and sharing session.
26th June 2024, 4:30pm – 5:30pm Australian Eastern Savings time
Topic information:
Did you know that June is CMV Awareness Month? So what better time to learn about this common virus, outcomes for children born with CMV, clinical outcomes for children with congenital CMV disease and opportunities for prevention.
Most importantly of all, during this session you will hear from families with lived experience describing their journeys and what family centred care has meant for them.
Join us for this interactive AusACPDM Listening and Sharing session which will be of interest to clinicians, researchers, students and people with lived experience.
Speakers: Hayley Smithers-Sheedy, Kath Swinburn and Pam Rogers
The session will be facilitated by: Hayley Smithers-Sheedy
Date: 26 June - 26 June
Location: Zoom, register for link.
Register now More detailsNov
IAACD Global Professional Education Committee Global Listening and Sharing Sessions 2024
The full schedule and links to each session are now out for the 2024 IAACD Global Listening and Sharing Sessions! The theme this year is “Families: Who cares for them”.
Families have an important role in supporting family members living with a childhood onset disability. Do we fully understand the needs of families and how we can support them? Join us to listen and share stories from family members from around the world and promote a community who care for families. Different sessions have been scheduled across the world, and anyone is welcome to join.
Download the full schedule with links to each sesssion: Final Global Listening and sharing timetable 23.11.2024
Check out the sessions below from our geographical region:
| GMT | Country | Country time | Topic title and format | Language | Zoom/Teams link |
| 12am | Australia | 10am ADST | “Behind the scenes: Perspectives of family support needs from parents of children living with disability” Panel discussion | English | https://mcri.zoom.us/j/65896132734?pwd=DQFtdvLus94kiLybODnyCCZqwTtS0a.1 |
| 630am | India | 12noon IST | “Families: Who cares for them?” Discussion | English | https://us02web.zoom.us/j/81154278880?pwd=d36qHiTKbyquVA26TSzfW4U7nNw9 0J.1 Meeting ID: 811 5427 8880 Passcode: 449892 |
| 7am | Sri Lanka | 1230pm | “Sri Lankan Families Supporting Children with Disabilities.” Interview discussion and personal reflections | English and Sinhalese | https://us02web.zoom.us/j/88462195426?pwd=oORRQXOHcVVrwqFilC0zg87CL1LVKC.1 |
| 730am | New Zealand | 730pm | “Reflections on Life, Loss and Therapy Responsibilities” Parents will share their reflections followed by open chat | English | https://us06web.zoom.us/j/83676016311?pwd=8GRJRi1xgQL3IbK6dSLeB4ZjQOPeYG.1
Meeting ID: 836 7601 6311 Passcode: 505656 |
Date: 29 November - 29 November
Location: Virtual, Links to register for each session are available in the attached flyer and linked webpage
Register nowMay
AusACPDM Listening and Sharing session: May 2024
Cerebral Palsy Global Clinical Trials Network
Join us in our free listening and sharing session.
Wednesday 15th May 2024, 4:30pm – 5:30pm Australian Eastern Standard Time
Topic information: This interactive AusACPDM Listening and Sharing session will be about:
The establishment of the Cerebral Palsy Global Clinical Trials Network, generously funded by the Elsass Foundation and Cerebral Palsy Alliance. This session will illustrate how through innovation, global collaboration and partnerships with people with cerebral palsy (CP), we aim to overcome the limitations of regular clinical trials for CP. The Network aims to improve outcomes and quality of life for those living with CP, via faster clinical trials using innovative adaptive designs, and faster translation of new treatments into usual care. We will delve into the rationale, current CP field agreement for the Network, development stages, and provide an update on the Network’s first adaptive prototype study.
This session will be of interest to clinicians, researchers, students and people with lived experience.
Speakers: Presenters include: Adjunct Associate Professor Maria McNamara, Jenna Mitchell, Karin Lind, Professor Iona Novak
The session will be facilitated by: Kirsty Stewart
Date: 15 May - 15 May
Location: Zoom, Register for the link
Register now More details